Toddler with rare disorder must eat nearly constantly to stay healthy

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GEORGIA– A toddler living with a rare metabolic disorder must eat almost constantly to stay healthy.

Kayla Torti told ABC News that her 23-month-old son, Owen, was diagnosed with LCHAD– Long-chain 3-hydroxy acyl-coenzyme A dehydrogenase– when he was a newborn. It means the toddler is not able to break down certain fatty acids into energy, so he must eat every hour.

Torti explained to ABC News, “If we had breakfast and skipped lunch [our body] would use up the energy from breakfast … [to] break down stored fats for energy. Owen’s body cannot do that. It breaks down his muscles and can cause problems with kidneys or liver or heart.”

Owen’s mom said the toddler acts like a normal two-year-old, but he must take breaks to be fed.  She told ABC News it’s not known exactly how the disorder will affect or limit Owen as he g rows up.

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