Baby Battling “Worst Disease You’ve Never Heard Of” Passes Away

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STOW, Ohio — A local baby who made headlines for her struggle with a horrific,  life-threatening disease has passed away.

According to her father's post on, Quinn Rosalie Seymour died on Saturday, just two days before she turned 8 months old.

Quinn was born with Junctional Epidermolysis Bullosa — Herlitz (EB), a rare genetic disease that causes severe blistering inside and outside of her body. Baby Quinn suffered with blisters and lesions from head to toe and even inside her mouth. There’s no known cure for this painful disease.

Back in February, Quinn received a bone marrow transplant, making her the youngest infant reported to receive the treatment. Stow, and the surrounding community, came together to support the family during that time.

To read more about baby Quinn and her battle with EB, click here.

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