Wish Granted for Twins with Rare Disorder

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LAGRANGE, Ohio -- Two little boys from Lagrange have been through an incredible amount in their young lives.

Twin brothers Bryce and Baen Hurst just turned two years old, and have suffered from Hurler's Syndrome, a rare genetic disorder with no cure, since birth.

Monday, a special organization granted a wish for the boys. A Special Wish Foundation built them a backyard playground, which will give the boys a good way to spend time with their family.

"Makes you feel good inside," said the foundation's Joe Powers. "When we do a wish, it's for the whole family -- not just for the risk kids. It's for the whole family."

The Hursts said they are very thankful for their new playground, because most of their spare money goes to medical bills and transportation for the twins.

"This gives us all something to do as a family every day," said Casey Hurst, the twins' mother. "We can just walk outside. We don't have to go anywhere. We still haven't done any big outings with them and with crowds ... because of the germs."

Because of Hurler's Syndrome, Baen and Bryce will have to undergo bone and joint surgeries throughout their lives, procedures their parents said will be difficult to get used to.

"Common surgeries for Hurlers are their hips, carpal tunnel, trigger finger," said Casey. "Bryce will have surgery on his eyes. Baen might have surgery on his eyes. Right now their hearing is at a mild loss."

Since Hurler's Syndrome is so rare, many doctors don't have any answers on life expectancy. So the Hurst's said they count each morning as a blessing when they hear their twins crying.

"As soon as we hear that in the morning, we say 'all right we made it another day. We got here'," said Casey.